Croía’s story
At the end of this month, Croía will be 15 months old—what an incredible milestone! She’s a little bundle of joy who loves starting her mornings with a bottle while watching Mickey Mouse, and her favourite adventure is heading to the swing park where she can zoom down the slide.
But Croía’s journey began in a way that was far from what we could have ever imagined..
At Croía’s 12-week scan, we were given news that would change our lives forever. We were told that Croía had a condition called gastroschisis—a condition where the baby is born with their bowel and other organs outside of the body. Our care was quickly transferred to the Royal Fetal Medicine Unit, and it felt like our world came crashing down.
Croía is my first child, and adjusting to this unexpected reality took time. Every expectation I had for my pregnancy, birth, and those first moments with my baby seemed to be taken away in an instant. It was an overwhelming shock; we had no choice but to take it one step at a time.


One of the most difficult challenges we faced was the distance from our home in Kilkeel and the hospital in Belfast. The journey took 90 minutes, making it difficult for Croía’s dad, who works in Dublin, to visit her during the week. Another heartbreaking challenge was not being able to hold Croía until she was 11 days old. Every parent’s dream is to hold their newborn and not being able to do that was excruciatingly painful. The sight of our tiny 5lb baby, covered in wires lying alone in an incubator made our hearts ache.
Despite these challenges, we couldn’t fault the care we received. The nurses and staff at the Royal, especially the NICU and Barbour ward nurses, were incredible. They worked tirelessly, not only for the children but also for the families, offering comfort, support, and reassurance. They checked in on us regularly, always offering kind words and support, even when we were feeling at our lowest.
Croía’s time in the hospital was filled with ups and downs. She had a silo bag placed around her organs to protect them until she was 6 days old, when she underwent surgery to place her bowel back into her tummy. She needed a breathing tube after surgery, an NG tube for 6 weeks and a blood transfusion. She also had a central venous line in her chest for 16 weeks before it was removed.
Throughout it all, the doctors, consultants and surgeons explained every procedure in detail, keeping us informed and reassured. They ensured we understood the risks and gave us hope by showing us how far Croía had come each day. Daily updates were a lifeline, especially when it felt like the road ahead was uncertain.

The journey wasn’t easy on any of us, especially mentally. The visiting rules meant that only grandparents could visit Croía in NICU and visiting hours were limited in the Barbour ward. For 6 and a half weeks, I sat in the ward, day in and day out, missing my family and longing to hold Croía. But the hospital did offer some comfort by providing us with a place to stay beside NICU, this was a huge help as I was recovering from a C-section and needed to stay close to Croía.
There were also small, kind gestures that made a big difference. I remember a Christian woman who walked around the ward, offering words of encouragement and wisdom. There were children’s occupational therapists who brought us soothing lights for Croía’s bed and monochrome cards for her to look at, even though she was only a few weeks old. It was these little touches that made us feel seen and supported.
One of my most cherished memories from those days was the first time I got to hold Croía. It had been 11 days, which felt like an eternity, but that moment will stay with me forever. The nurse asked if I wanted to cradle her and, in that moment, I finally held my little girl in my arms. It was pure magic. Croía’s daddy got to hold her the following day and it was equally special.
I am forever grateful to the amazing staff at the Royal Belfast Hospital for Sick Children. Their dedication and care have meant the world to us, and I will never be able to repay them for all they’ve done. They truly are real-life angels. The work they do is so important, not just for the children, but for the parents as well. Their kindness, patience, and unwavering support have been a source of strength for our family.
Recently, I had the privilege of raising £2,500 for the Little Heroes Charity, a small way of giving back to those who supported us during the hardest time of our lives. The charity’s work is so important, and I encourage anyone who can to support it in any way they can.
To any parents who are just beginning this journey or who are going through something similar, I want to share this: Stay strong. It may feel impossible at times, but eventually, you’ll look back and it will feel like a distant memory. I remember sitting in that ward, dreaming of taking Croía for a walk, or taking her home to see the rest of the family. Those days come. Focus on the days after the hospital, and try to stay positive, no matter how hard it may be.
Croía’s Mum, Aimee

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